Discussions About Being Bald > Sly Bald Gals - Women's Corner
Could use support - new diagnosis
Hingatao:
We're all praying for you.
sahil15:
I shall pray for you... cant even begin to imagine what you are going through.... your really brave and a source of inspiration for us all.
Adamski1972:
Sending all my best wishes and positive hopes.
Razor X:
Sorry to hear this. You are in my prayers.
gutsygirl:
Thanks so much for the encouragement - much needed and appreciated! I've been in and out of my wheelchair for over 10 years now. I was doing so well walking with minimal assistance in Sept Oct and Nov 2012 - I even had one of my dreams come true; to rollerskate again (I bought a $30 pair of rollerskates at wally world, pink of course, and learned to skate again in the parking lot outside my apartment using my rolling walker and of course helmet and tons of padding like the michelin man...even went to a roller skating rink!). The good news is I NEVER took that for granted; I always thoroughly enjoy any day/minute I can be standing and walking, even when it hurts like hell. :-) I fight to keep walking and have learned to walk at least 4 times over through therapy.
The latest flare up on december 2nd has been the scariest ever. The pain...wow...a whole new level to me. So its back to the wheelchair for now. I've had CRPS for the last 10 years which finally explains the burning pain in both legs after my reconstructive surgeries as well as the osteoporosis in both legs; it was just never properly diagnosed because docs kept saying it was "in my head". Grrr. Now its so bad that they can watch my leg turn blue, swell, get deathly cold, etc and they believe me. Problem is...the longer one goes without treatment (like...10 years!), the poorer the outcomes.
Some treatments my docs and I are considering: lumbar nerve blocks, neuropathic pain meds, baclofen and pain pump, nerve ablation (frying the nerves with radio frequencies and heat), ketamine infusion/internasal spray, physical therapy (already been there done that), desensitization programs (hell), stress loading programs (double hell), and spinal cord stimulator.
Though most of those treatments really suck in one way or another, I'm glad there are at least a bunch of options left for us to try at this point. I will let you know how it goes.
You guys and gals are awesome, by the way!! I'm here for ya too if ya need to vent. :-)
Gutsy
Navigation
[0] Message Index
[#] Next page
[*] Previous page
Go to full version