Discussions About Being Bald > Sly Bald Gals - Women's Corner
Could use support - new diagnosis
g_bald:
Hi GutsyGirl,
I have seen your posts and you strike me as strong and having a positive outlook. That you are facing so much pain fills my heart with sadness. Bad things should not happen to good people.
I wish you all the strength, support and encouragement you need to make it through this most difficult time. I am sending you thought, prayers, best wishes and hopes that you are finding hope and a reason to smile every day !!!
Best wishes and godspeed you to a complete and full recovery! :)
-gary-
theebaldguy:
Hi GutsyGirl,
Your chosen name certainly fits you. I can't imagine living with chronic pain, but your incredible strength, positive outlook, and faith in God is so inspiring. I pray that you will find relief. You have inspired so many of us here. Keep flashing that beautiful smile!
God Bless,
Peter
MarshalArtist:
GutsyGirl I just found this thread and I want you to know I add you to my prayers now daily.
From a theological perspective it's important to remember that healing can occur even if there is not a cure. I think you are well on your way to being healed because you are thankful for what you have, take nothing for granted, and are trying to live your life to the fullest despite these issues you have. (I'm also pleased no one said, "God never gives us more than we can handle" to you because that's just crap--trust me.)
Now putting on my neuropsychiatric hat...I know of two patients who have the same regional pain condition you have that benefitted greatly from using pregabalin (Lyrica). It's the drug you see on television for fibromyalgia and diabetic neuropathy treatments. It is being shown to have significant effects on people with neurogenic pain disorders of all sorts. I have no idea if it will help the autonomic symptoms you're having like blood vessel constriction/dilation, but I think it could help the neuralgia that you have with temperature, pressure, and other stimuli. (Notice I say could.) I have no guarantee that it will work for you personally, nor do I know if it is possible for you personally to use this drug as I do not know your whole medical history. Maybe you've already tried it and it didn't work for you. But if you haven't tried it, it wouldn't hurt to ask your doctors about it. If it doesn't work, you're where you are now but if it does, you could be feeling so much better.
Blessings and perfect Peace,
Marshal
gutsygirl:
Hello gents and ladies. I am doing well now. I had my spinal cord stimulator implant surgery on December 14th. So I'm not yet 1 month out from the surgery. I am doing much better than we expected. The simulator is helping with about 40 to 60 percent of my pain, or at least certain types of pain. I'm very happy about that. I have 4 months of movement restrictions, & I am NOT allowed to bend, twist, turn, or lift more than 5 pounds. So I'm not able to fully care for myself. However, I have a CNA coming in the mornings to my home and usually a friend will stop by at night to help me get to bed. I am happy, and sly as usual.
I'm trying to get caught up on some blogging. So now, I am resting as I recover, and that should give me some good time to write. I want you guys to know how much it means to me that you have been praying and supporting me. I feel very blessed indeed. Here's to a wonderful 2014.
Frontier Guy:
Strong, positive, healing thoughts are beaming in your direction. You've taught us all so much about appreciating every day and dealing with the unexpected challenges which may emerge.
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