Discussions About Being Bald > Sly Bald Gals - Women's Corner

Could use support - new diagnosis

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gutsygirl:
Thank you all. And thanks for passing my needs along so others can pray - the more the better IMO!

I'm no stranger to pain at this point, having had rather severe pain most of my life. No stranger to odd, rare new diagnoses too but this one seems to hit especially hard for some reason...maybe because there seems to be little I can do myself to keep the pain away.

No its not from my spine, but instead from my sympathetic and autonomic nervous system reacting as though I have a severe injury when there is none. Have never heard of spinal decompression but I do see a chiropractor regularly which I feel helps with my back pain, balance, etc.

I started a new blog last night: www.crpsablaze.wordpress.com. I also blog at www.naturallygutsy.com :-)

Leaving for the hospital at 6:30am and won't be back till afternoon following my biofeedback appointment so I better get to zzzz. Good night fellas.  :-)

warhawk:
Hi Gutsygirl:  Just wanted to let you know that you will be in my prayers.  I love your attitude.  Kindly keep us posted.

WARHAWK O0

Sir Harry:
Gutsygirl, as one of your biggest fans, (as well as one of Bella's biggest fans), you are in our prayers everyday. No matter what your SBG brothers and sisters are here for you. Stay strong and God Bless you!

gutsygirl:
I'm ssssooooooo exhausted and oign to bed but just wanted to say HI, I'm alive, and thanks again for all the praeyers and support.  My left leg especially really hurts but I'm hopeful for some treatment and possibly some relief in the next few months.  Good night. 

Gutsy

gutsygirl:
Sorry I haven't been around much. Just trying to survive with lots going on.

Had my first series of nerve blocks in my lumbar spine today on both sides. Went fine but of course my back is sore. The results are just ok - no huge relief but there is some. I felt my legs get warm as blood circulation increased and that was a nice feeling - legs not as blue/gray/purple. I'm a little less sensitive to vibration like the vib from riding in the car with my foot on the floorboard. I can also release the velcro on my shoes without pain and I have less limp when I am weight bearing. When I got my shower I noticed my sense of temperature was greatly improved (warm water didn't feel scalding hot and the cool tile floor didn't feel like dry ice)! The feeling that my left leg is deeply bruised is still there as is the allodynia (painful hypersensitivity to touch that should not be painful).  All in all, I figure I will take whatever relief I can get.

My legs are quite swollen and the left one is really red tonight but the burning isn't too bad. Doc said the nerve block will probably only last me 2 days.

Trying for more sleep. :-)

GG

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