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Could use support - new diagnosis
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Topic: Could use support - new diagnosis (Read 22983 times)
OzSly
Ultimate Sly Guy
Posts: 558
Re: Could use support - new diagnosis
«
Reply #15 on:
March 27, 2013, 07:59:37 PM »
You are truly an inspiration to us all GutsyGirl *Big Hug*
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smoothsailing
Sly
Posts: 196
hairfree = carefree
Re: Could use support - new diagnosis
«
Reply #16 on:
March 27, 2013, 08:42:49 PM »
So it has something to do with your spine or what? I heard about something called "spinal decompression" from a doctor that practices it here and apparently it is a not-so-widely-known treatment. I have no clue if it would apply to you, but just my two cents.
If you've lived with this for 10 years then you're clearly a strong person. I know you can overcome this!
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-Doug-
Sly Moderator
Sly Bureau
Posts: 2249
Country:
Be yourself. Everyone else is already taken.
Re: Could use support - new diagnosis
«
Reply #17 on:
March 28, 2013, 08:13:37 AM »
I hope that your docs can figure out a treatment plan and course of action for you. Lean on God through this. He's got your back!
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Life has three aspects: Paradox, Humor, and Change.
•
Paradox
: Life is a mystery; don't waste time figuring it out.
•
Humor
: Keep a sense of humor, especially about yourself. It is a strength beyond all measure
•
Change
: Know that nothing stays the same.
clarinetguy
BBC and Sly since April 22,2012
Super Sly
Posts: 285
Re: Could use support - new diagnosis
«
Reply #18 on:
March 28, 2013, 03:49:44 PM »
Supporting you in thoughts and prayers here- you seem to have a very strong spirit. We are here to support you.
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Pshrynk
Guest
Re: Could use support - new diagnosis
«
Reply #19 on:
March 28, 2013, 06:00:16 PM »
Hey Gutsy Girl,
I have a pretty recent diagnosis of aggressive Rheumatoid Arthritis and I know what it's like to have pain. Hang in there and keep that pretty smile shining.
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gutsygirl
Surviving Chronic Illness with a Smile :D
Sly
Posts: 196
Gutsy is as Gutsy does!
Re: Re: Could use support - new diagnosis
«
Reply #20 on:
March 28, 2013, 09:37:07 PM »
Thank you all. And thanks for passing my needs along so others can pray - the more the better IMO!
I'm no stranger to pain at this point, having had rather severe pain most of my life. No stranger to odd, rare new diagnoses too but this one seems to hit especially hard for some reason...maybe because there seems to be little I can do myself to keep the pain away.
No its not from my spine, but instead from my sympathetic and autonomic nervous system reacting as though I have a severe injury when there is none. Have never heard of spinal decompression but I do see a chiropractor regularly which I feel helps with my back pain, balance, etc.
I started a new blog last night:
www.crpsablaze.wordpress.com
. I also blog at
www.naturallygutsy.com
:-)
Leaving for the hospital at 6:30am and won't be back till afternoon following my biofeedback appointment so I better get to zzzz. Good night fellas. :-)
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CRPSablaze.wordpress.com, NaturallyGutsy.com
warhawk
sly 4 life
Sly Moderator
Sly Nobility
Posts: 7615
Country:
Re: Could use support - new diagnosis
«
Reply #21 on:
March 28, 2013, 10:02:32 PM »
Hi Gutsygirl: Just wanted to let you know that you will be in my prayers. I love your attitude. Kindly keep us posted.
WARHAWK
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Tough times don't last but tough people do!!!
Sir Harry
Sly Kegler
Sly Moderator
Sly Nobility
Posts: 5724
Country:
Re: Could use support - new diagnosis
«
Reply #22 on:
March 29, 2013, 01:08:40 AM »
Gutsygirl, as one of your biggest fans, (as well as one of Bella's biggest fans), you are in our prayers everyday. No matter what your SBG brothers and sisters are here for you. Stay strong and God Bless you!
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Even when the d is removed, the devil is still evil.
gutsygirl
Surviving Chronic Illness with a Smile :D
Sly
Posts: 196
Gutsy is as Gutsy does!
Re: Could use support - new diagnosis
«
Reply #23 on:
April 01, 2013, 09:25:10 PM »
I'm ssssooooooo exhausted and oign to bed but just wanted to say HI, I'm alive, and thanks again for all the praeyers and support. My left leg especially really hurts but I'm hopeful for some treatment and possibly some relief in the next few months. Good night.
Gutsy
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CRPSablaze.wordpress.com, NaturallyGutsy.com
gutsygirl
Surviving Chronic Illness with a Smile :D
Sly
Posts: 196
Gutsy is as Gutsy does!
Re: Re: Could use support - new diagnosis
«
Reply #24 on:
April 11, 2013, 01:27:58 AM »
Sorry I haven't been around much. Just trying to survive with lots going on.
Had my first series of nerve blocks in my lumbar spine today on both sides. Went fine but of course my back is sore. The results are just ok - no huge relief but there is some. I felt my legs get warm as blood circulation increased and that was a nice feeling - legs not as blue/gray/purple. I'm a little less sensitive to vibration like the vib from riding in the car with my foot on the floorboard. I can also release the velcro on my shoes without pain and I have less limp when I am weight bearing. When I got my shower I noticed my sense of temperature was greatly improved (warm water didn't feel scalding hot and the cool tile floor didn't feel like dry ice)! The feeling that my left leg is deeply bruised is still there as is the allodynia (painful hypersensitivity to touch that should not be painful). All in all, I figure I will take whatever relief I can get.
My legs are quite swollen and the left one is really red tonight but the burning isn't too bad. Doc said the nerve block will probably only last me 2 days.
Trying for more sleep. :-)
GG
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CRPSablaze.wordpress.com, NaturallyGutsy.com
tomgallagher
Ad Free VIP
Sly Nobility
Posts: 5497
Country:
Re: Could use support - new diagnosis
«
Reply #25 on:
April 11, 2013, 08:46:17 AM »
Hello Gutsy, my positive thoughts and prayers go out to you. I have peripheral neuropathy in my legs and hands and have to use a wheelchair quite a bit so I sort of know what you are going thru. Be strong baby.
Tom
«
Last Edit: April 11, 2013, 08:49:51 AM by Silverback
»
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warhawk
sly 4 life
Sly Moderator
Sly Nobility
Posts: 7615
Country:
Re: Could use support - new diagnosis
«
Reply #26 on:
April 11, 2013, 10:28:23 AM »
Hi GG: Thanks for the update. Prayers and good thoughts to you. I love your attitude.
WARHAWK
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Tough times don't last but tough people do!!!
Slyfive
Human Torpedo!
Sly Bureau
Posts: 1217
Better to be bald than balding
Re: Could use support - new diagnosis
«
Reply #27 on:
April 11, 2013, 02:05:29 PM »
Hi Gutsy, sorry it's taken me so long to comment, just want to say that my prayers are with you, your strength and resolve are inspirational and believe you will get better, just keep going and you're on your way.
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-Doug-
Sly Moderator
Sly Bureau
Posts: 2249
Country:
Be yourself. Everyone else is already taken.
Re: Could use support - new diagnosis
«
Reply #28 on:
April 13, 2013, 02:53:57 PM »
Gutsy, sorry to hear that your having these problems. I hope that the docs can relieve it. Prayers offered up.
Logged
Life has three aspects: Paradox, Humor, and Change.
•
Paradox
: Life is a mystery; don't waste time figuring it out.
•
Humor
: Keep a sense of humor, especially about yourself. It is a strength beyond all measure
•
Change
: Know that nothing stays the same.
baldOUfan
Sly Okie
Sly
Posts: 199
Country:
Boomer Sooner
Re: Could use support - new diagnosis
«
Reply #29 on:
April 17, 2013, 10:51:29 AM »
vibes your way
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Could use support - new diagnosis